In November 2020 I created a survey for people affected by Long Covid, in an effort to help research what I believe to be a serious and growing problem.
Whilst I am not a medical researcher by profession, I have long nurtured an interest in, and knowledge of, fatigue, unexplained illness/symptoms and auto-immune conditions, through family experiences. Training as a reflexologist helped to further my knowledge in these areas, whilst studying anatomy, physiology and pathologies.
Being naturally curious about health, concerned for those affected, and with time available due to Covid-19 government guidelines, I formed the idea of a survey to research Long Covid from a holistic perspective. I therefore designed the survey to consider respondents' broad medical background, but also looking at lifestyle and environmental factors, in relation to the incidence and experience of Long Covid. It is clearly very important to gather input from the experts - those affected by it - including personal experiences, and any findings as to what medical or other treatments may be helping, or not.
The survey was open to participants from 11th November 2020 to 1st January 2021. In total 527 people responded to the survey, with 378 people completing it fully. All results are given as actual numbers, or percentages of respondents to that question, rather than percentages of total participants. Survey participants became aware of the survey primarily via Long Covid/Covid-19 Facebook groups, Instagram, and by word of mouth. It was completed anonymously.
Some interesting results are reported in the Notable Findings document below. Detailed results from all questions are available in the ‘Full Results’ PDF document further down the page.
I will be sharing results with people working on Long Covid in various capacities, and importantly will use the information I have learned to inform my treatments moving forward, once government guidelines permit.